Narrative Knowledge

If we wish to know about a man, we ask what is his story, his real, inmost story. – Oliver Sacks, MD.

Narrative knowledge is what one uses to understand the meaning and significance of stories through cognitive, symbolic, and affective means.

As literary critic R.W.B. Lewis wrote: “Narrative deals with experiences, not with propositions.”

I think that for example, poetry works well when people are writing about their personal experiences with illness because those experiences are often unfamiliar for others and need to be heard.

Brandon Johnson wrote this poem, ‘Scared,’ while being treated for spinal muscular atrophy at the Haslinger Pediatric Palliative Care center in Akron, Ohio:

When I’m losing my strength, I’m scared

When I see my friends move forward with life, I’m scared

When I’m stuck in the same position as every day, I’m scared

When I see my mom cry, I’m scared

When I’m not feeling strong mentally, I’m scared

When I see my skeleton, I’m scared

When I think of my future, I’m scared

When I think of my loved ones’ futures without me, I’m scared

When you are loved, do not be scared

When you live in every second, do not be scared

When your body is unique, do not be scared

When you’re unsure of who you’re meant to be, do not be scared

When your loved ones worry for you, do not be scared

When you cannot move, do not be scared

When your friends move forward, be proud, do not be scared

Find your strength in music, art, and loved ones, do not be scared

Weine wrote in “The witnessing tragedies this sentence”: ‘Listening to stories of illness and recognizing that there are often no clear answers to peoples’ narrative questions demand the courage and generosity to tolerate and to bear witness to unfair losses and random tragedies.’

I think this says it all.